Building a Rare Disease Foundation

Building a Rare Disease Foundation

@rashmi

35 Followers

1 week ago 179

Gov & Nonprofit #Nonprofit #RareDiseases #PatientAdvocacy

Building a Rare Disease Foundation

@rashmi1 week ago

Science, Medicine & Sheer Will:
Building a Rare Disease
Foundation
10 years of the Systemic JI…

1/6

Collectively Rare
Diseases are one of the
largest diseases in the
world. Very few of them
h…

2/6

History and Mission
First NextGen conference in 2016
• Founded in 2014 by Jon Boutelle and Rashmi…

3/6

NextGen Therapies for SJIA
conference
First NextGen conference in 2016
• Brings together patien…

4/6

Part of the Rare As One
Network of Patient Foundations
(funded by Chan Zuckerberg
Foundation)…

5/6

A Rare Disease Foundation is
the Work of Many People
Parents
Luciana Pereira
Leah Bush
Hanyi …

6/6

@rashmi

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Comments 1 Info

- @rashmi
- 1w
Sharing my foundation slides

Building a Rare Disease Foundation

@rashmi

Gov & Nonprofit

#Nonprofit #RareDiseases #PatientAdvocacy

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