Who Defines Me? A book about SJIA.

Who Defines Me? A book about SJIA.

@BPGPeixoto

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Other #PersonalJourney #sjiafoundation #ChronicIllness #personalproject

Who Defines Me? A book about SJIA.

@BPGPeixoto1 month ago

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Who
Defines
Me?
By: Beatriz Peixoto

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Message
This book is dedicated to all of the kids who suffer from JIA. To let you
know that you …

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Contents Page
Chapter 1: My Journey - A Brief
History........................................
…

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SJIA made me stronger. It made me
want to keep fighting. It motivates me
to say, 'I know …

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Chapter 1: My Journey -
A Brief History
I am Beatriz, and I have Systemic Juvenile
Idiop…

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For me, it all started in the beginning of
September 2013, at the age of 11 when m…

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inflammation signs in the body. By this time I was
already on painkillers for me to at least be ab…

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methotrexate treatment. Once I was stable, in
November 2014, the doctors decided to try …

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2015 I started the Ilaris which is also known as
canakinumab.
After spending June, J…

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energetic girl that I always was so with that I had
to stop playing football for the sch…

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over, we never decided on another treatment.
Then in the beginning of October 2017, it felt
l…

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Take the medicine your doctor
prescribes and don’t forget to take
it. Don’t give up an keep m…

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Chapter 2: The Basics
Arthritis is a disease that is present in the
lives of many peo…

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limitation of movement in many children. The
word idiopathic in the term means that th…

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Juvenile Idiopathic Arthritis is not a very
common disease for kids to have so, there is…

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can last for more than 6 weeks at a time. When
trying to diagnose as doctors hav…

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with JIA wake up with morning stiffness in their
joints as they did not move a …

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fever, it is normally called Oligoarticular JIA and if
more than 5 joints were affected …

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Half of the patients diagnosed with systemic JIA
have long term prognosis meaning that …

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Another type of JIA is Oligoarticular JIA and
this is the most common type of arthritis…

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knees and the elbows are not affected, the nails
are affected instead. JIA can be…

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pain. What scientists have discovered however is
that if a family tests positive for a …

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still get regular check up on their eyes as it can
relapse at any point (even w…

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• I feel broken
• I feel as though everyone knows I am different
• I wonder what it is like …

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Chapter 3: Symptoms
The symptoms of Juvenile Idiopathic Arthritis
are very tricky to detect i…

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and legs. It does not normally itch and it also
tends to come and go either with …

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Pain: Arthritis can cause 2 different types of pain.
The first type of pain is joint pain whic…

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warm to the touch. Swelling can also be seen by
showing redness on the skin but it is …

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Sometimes you will
get bullied but
that’s ok. You are
you. Nothing can
break you. If you
a…

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I was diagnosed with JA in 2009 and life has
pretty much been flipped upside down. But my
adv…

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Chapter 4: Treatments
There is no cure for JIA however, there are
existing medications and…

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When a child first receives the diagnosis of
JIA, the doctor will probably prescribe medic…

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only control it. Other more inexpensive drugs like
ibuprofen or naproxen are not used as…

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second level drugs only show results after several
weeks or months of use.
One of the most …

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regularly as the drug could cause some liver
function problems. By combining anothe…

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When cyclosporine treatment is decided to be put
to the test, it is normally used with …

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inflammatory process of JIA. What is different
about these drugs compared to other JIA d…

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Finally, the third drug that has been approved for
JIA is infliximab which is an intrave…

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When looking at anti interleukin 1, there are 2
different medications, anakinra and ca…

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to do this, the patient has to be in remission.
Dental care is important as well when
l…

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have declared as signs of remission. The signs
are that all the patients blood work has…

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My advice to you is not to be ashamed /
embarrassed of having arthritis. Once you feel
like y…

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Chapter 5: Organisations
and Events
There are many organisations around the
world that …

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done on arthritis (for both children and adults).
This organisation is considered t…

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finding a cure or a more convincing treatment for
juvenile arthritis. Their main focus is…

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awareness organisation in the world that is non -
profit. The organisation mainly focuses…

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conferences but they also help to inform other
parents on clinical trials and how …

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to the Arthritis Foundation. The objective of this
conference is to let families b…

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comfortable to stay alone at the site. At the end,
the camp owners hope that the kids hav…

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Keep going, it gets better. And theres
always tomorrow.
McKenzie, 14
It can be hard to
tel…

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Chapter 6: My Future -
Where we go from Here
Today I am still waiting for my pathway
…

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and fortunately we have already found one. My
family and I have decided that I will …

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learn to keep your calm and explain. People might
also judge you by your looks as many …

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go your way and that you have to understand that
at some point, everything will be OK a…

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opportunities to improve your grades as other
students in the school might have.
The m…

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the ones who define who they will become and
who they want to be and not the disease, …

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helped me the most when things got too
overwhelming was writing a diary about how…

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everything inside is what is going to ultimately
break you from what I have learned. Ke…

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Beatriz was born in Rio de Janeiro, Brazil. She was
born on August 19th, 2002 and moved to Cur…

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@BPGPeixoto

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A 10th grade project where I wrote a book about SJIA

Who Defines Me? A book about SJIA.

@BPGPeixoto

Other

#PersonalJourney #sjiafoundation #ChronicIllness #personalproject

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