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Explore the Chernobyl disaster's timeline, its devastating impact on human health, and environmental changes. Learn the causes behind the reactor explosion, the response efforts, and ongoing repercussions for Ukraine, including economic costs and ecological recovery. This presentation highlights Chernobyl's historical significance and lessons for future nuclear safety.

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This impact report presents achievements from Cycle 1 of the Rare As One Network, a network of 94 patient-led rare disease organizations driving forward progress against rare disease. This report highlights the scientific momentum and progress these organizations have inspired, and the impact that a network of similarly placed and determined patient advocates can have when provided with baseline funding, capacity building support and opportunities to collaborate with one another.

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This presentation discusses the critical need for an effective pandemic surveillance system, emphasizing wastewater biosensors as a key tool for early detection. By integrating these sensors into local communities, we can achieve real-time data collection and improve public policy decisions, ultimately enhancing our preparedness for future pandemics. The approach is scalable, reusable, and eco-friendly, ensuring sustainable monitoring.

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Presentation from Dr. Fatma Dedeoglu: Weaning Therapy

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Presentation from Dr. Bas Vastert: Biomarker-Guided Treatment-And-Stop_Strategy for Recombinat IL-1Receptor Antagonist (anakinra) in systemic Juvenile Idiopathic Arthritis

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Presentation from Dr. Michael Ombrello: What is the role of HLA DRB1*15 in Still's disease

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Presentation from Dr. Mariana Marques: Recent discovery in genomics of SJIA

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Presentation from Dr. Randy Cron: Clinical Utility of Genetics in systemic JIA

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Presentation from Dr. Lauren Henderson: recognizing and Treating Lung Disease in Systemic Juvenile idiophatic Arthritis

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Presentation from Dr. Claudia Bracaglia: Monitoring and Treating Lung Disease in Still's Disease

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Presentation from Dr. Grant Schulert: Criteria to consider BMT

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Presentaton from Dr. Juliana Silva: Long Term outcomes of Allogeneic HSCT for severe, refractory Juvenile Idiopathic Arthritis

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Presentation from Dr. Jim Connelly: Immune Reconstitution after Bone Marrow Transplant

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Presentation from Dr. Rebecca Marsh: BMT: How does it work and when it can be considered?

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Patient perspective about BMT in SJIA: Presentation from Luciana Pereira

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International Perspective: Presentation from dr Bruno Fautrel: Treating Refractory Adult Still's Patients

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International Perspective: Presentation from Dr. Juan Manuel Mosquera, Spain: Refractory disease (Still’s +/- MAS)

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International perspectives (China): Presentation from Dr. Caifeng Li

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International perspectives (Brazil): Presentation from Dr. Maria Teresa Terreri

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Presentation from Dr. Nadrendra Bagri: International perspectives (India)

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Presentation from Dr. Fabrizzio de Benedeti: Clinical Trials in Still's Disease (sJIA/AOSD)

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Presentation from Dr. Alexei Grom: SJIA with relapsing MAS